Your address will show here +12 34 56 78
Community, Housing, Personal Stories, Uncategorized

Paul Alford was born with a mild intellectual disability and grew up in institutional care away from his family. He tells MaryMcAleese about his fight to work in the community, travel independently and get a place he could finally call home. Paul and Mary do the turas together in the stunning Gleann Cholm Cille, Co. Donegal. 

Turas Cholmcille is named after St Columba who lived and prayed in Glencolmcille 1500 years ago. One of Ireland’s patron saints, who is said to have brought Christianity to Scotland, he was exiled to Iona where he founded an abbey. Today pilgrims still follow in his footpaths to do the 15 turas or stations of this beautiful Donegal walk.

As Mary and Paul set off on their pilgrimage, he tells her about growing up in the 1960’s, when it was common to put disabled children into institutional care. ‘I had a family living in East Wall, but I never lived at home’, he tells Mary. ‘I was always away at these boarding places. It was a hard life. You lived in dormitories and if you didn’t behave you were hit with a cane. I felt upset and used to get distressed a lot, but I used to see my parents at the weekends. My mother and brother used to come out on a bicycle and bring me a few sweets and have a chat with me.’

Paul lived and worked in residential care for over 50 years, but always dreamt of a more independent life out in the community. As an adult he became involved in advocacy work for people with disabilities, because he was unhappy with the living and working conditions.

Paul has now worked in Inclusion Ireland for over 14 years and has traveled the world on his own. He has also finally been able to buy his own home.

Living in institutions for so many years had a profound impact on Paul’s relationship with his parents. ‘I was angry with my parents and I thought that they were like strangers to me, because I never lived at home in my life. I loved to see them, I loved my mother and father, especially my father Jim – he was a nice man. I would pray for them and I think they are looking down at me. They would be proud of me getting my own house and having a proper job and wages. I have surprised myself at getting this far, I thought I’d never achieve this in my life’.

0

Community, Personal Identity, Relationships, Resources

What does Person Centered mean? A Conversation with Jack Pearpoint & Lynda Kahn



                                                                                                   Watch the interview here

“Person Centered” is a phrase used by organisations and individuals, relating to care, planning, education…but its often misused. What does person centered actually mean? I chatted to Jack Pearpoint and Lynda Kahn, both renowned worldwide for their work in the field of inclusion and planning, about the ideas behind the person centered approach and what happens when it is mis-used, with a particular slant towards planning.



~~~~ Useful Links ~~~~~

Inclusion Press:
http://www.inclusion.com



~~~~ Social Media ~~~~~  

Jenny Trott’s social media
 
Facebook:
http://facebook.com/jennytrott2
Instagram:
http://www.instagram.com/jenny.trott
Twitter:
http://www.twitter.com/jennytrott_
 
 
0

Community, Housing, Personal Identity, Resources

Research Report: Supporting people to live self-directed lives in the community: Learning from 54 Irish projects


Founded in 2008, Genio works to achieve a vision where all people are valued and supported as equal members of society

Genio’s current programmes in Ireland are reaching whole populations of need in disability, mental health and homelessness in Ireland, in many cases underpinning national reform programmes.

Genio is a European organisation based in Ireland working with philanthropy and government at national and EU levels. Specialising in social service transformation, Genio has a deep understanding and track record of complex system change and combines fund-management, capacity-building, action research and impact-measurement to effect public service reform. The hallmark of Genio’s work is to strive to ensure service user involvement at every level of service design and delivery.

This work has been supported by the Atlantic Philanthropies and is now being sustained by Government. In the last 10 years Genio has helped to facilitate change and improvements for over 8,500 people across disability, mental health, dementia and homelessness services.


In 2014 Genio published a research report on how to support people with disabilities to live self-directed lives in the community. This research was drawn from 54 innovative projects across Ireland that were supported by Genio.


Abstract


The paper outlines the key learning from 54 projects which have been supporting people with disabilities and mental health difficulties to move, usually from institutional settings, to live self-directed lives of their choosing in their local communities. The paper describes the implementation learning that has taken place; how this happens in practice; and the factors which lead to and support positive outcomes for the individuals. The paper draws on a significant body of data collected from these projects during on-site visits which included meetings with the project leads, key staff and the people being supported as well as family members, advocates and other allies.


The following characteristics have been identified as most strongly associated with good outcomes for the person and the organisation;

  1. Multi-level leadership – there should be ‘a champion’ at all levels of the organisation who supports and drives the move to a new way of supporting those using the service.
  2. Involving families and allies – needs to be done in a way that acknowledges their concerns, that considers how they want to be involved in supporting their family member and that considers the wishes of the person.
  3. Engaging and consulting with stakeholders – engagement should be future-focused on how different stakeholders are going to contribute to the new supports being developed.
  4. Staff skills and training – staff need to be trained/supported into these new ways of working.
  5. Readiness -the starting point should be that everyone is ready to move, with the emphasis on what supports needed to be put in place to ensure this happens safely and in a way that is designed by the person.
  6. It’s about more than housing – time should be built in for a process of really getting to know the person so that informed decisions can be made about accommodation options.
  7. Building strong and lasting relationships with the community – links with the community should be made in a very intentional and purposeful way for each person based on their abilities, contributions, wishes and needs.
  8. Start small and ‘model’ change – those involved act as ‘peer models’ for the process and the change involved. For those who will be moving, seeing their peer preparing and then successfully move, can give others encouragement that this is possible.
  9. Challenge of reconfiguration – in order to provide the supports for those who have moved, existing resources must be reconfigured so that the supports can move with the person.
  10. This takes time – to be done really well for each person, this process takes time.
  11. Focus on outcomes and monitor progress – progress can be greatly assisted by monitoring progress towards agreed outcomes.





Download here








0

Circles of Support, Community, News, Resources

Living Room Conversations…ideas that influence Person Centered Work


John O’Brien and Connie Lyle-O’Brien have spent a lifetime moving our thinking about how people with developmental disabilities can be supported, shifting from institution and program centered life, to the person centered life of citizens contributing to the communities where people live. This video explores a framework for thinking that John and Connie began to develop more than 40 years ago, incorporating the five valued experiences and the five accomplishments that can shape the intent, focus, and delivery of support.


Click on the picture to watch the video or click here
0

Resize Text